National Data Sharing Opt-Outs

General Practice Data for Planning and Research (GPDPR)

The data held in the GP medical records of patients is used every day to support health and care planning and research in England, helping to find better treatments and improve patient outcomes for everyone. NHS Digital and the Government have developed a new way to collect this data, called the General Practice Data for Planning and Research data collection.

NHS Digital has engaged with the British Medical Association (BMA), Royal College of GPs (RCGP) and the National Data Guardian (NDG) to ensure relevant safeguards are in place for patients and GP practices.

Type 1 Opt Out: GP to NHS Digital

This collection will start on 1st September 2021. If you do not want your identifiable patient data from the GP practice to be shared with NHS Digital for purposes other than for your own care, please complete and return to your GP Practice a Type 1 Opt-out form no later than 25th August 2021. If you return your form after this date, data sharing will stop from the date of registration.

To submit a Type 1 Opt-Out form ONLY please click here, print and complete the form and bring to reception.

National Data Opt-Out (Type 2): NHS Digital to Third Parties

In addition, if you do not want NHS Digital to share or sell your data to third parties, you have two options:

a) complete the National Data Opt-Out form ONLY. This will stop information from your medical records being shared with third parties. You can do this online or via the NHS App. The GP Practice does not have any control over this and cannot process this for you.

To submit your National Data Opt-Out form, you can complete the form on the NHS Digital website here.

Alternatively, you can complete the form on the NHS APP by logging into your app, going to ‘Your Health’ and selecting ‘Choose if data from your health records is shared for research and planning’. Or you can print, post or email a non-digital form to NHS Digital by clicking here.

  • Please note:
    Do not send this form into the Surgery. This form must be sent directly to NHS Digital. The Surgery will not be able to forward these on for you.
    The National Data Opt-Out will not prohibit this data extraction for your GP record
    .
    To do this, you need to complete the Type 1 Opt-Out form.

b) complete both Type 1 Opt-Out AND National Data Opt-Out (Type 2).

  • Type 1 Opt-Out form (to stop your GP records being used for planning and research. This form needs to be completed and returned to the Surgery.
  • National Data Opt-Out form (to stop your personal GP records being shared with third parties). This needs to be completed either online or using your NHS App, or the form can posted directly to NHS Digital

To view a flowchart guide to national data opt-outs, please click here.

For further information please go to NHS Digital: https://digital.nhs.uk/services/national-data-opt-out